Anonymous Sperm Donors threatened by growth of genetic testing

The rise of personal genetic testing and growth of international DNA databases could put an end to anonymous sperm donors and anonymous egg donation as donor-conceived individuals may unintentionally discover biological relatives, according to UCL researchers.

 

The paper, published today in the journal Human Reproduction, reinforces the need for parents using  anonymous sperm donors and anonymous egg donors to be fully informed that their children’s DNA will identify that they are not the and that they should be encouraged to disclose their use of . Anonymous sperm donors should also be informed that their anonymity is not guaranteed, irrespective of whether they are donating in a country that practises anonymous donation or not.

Over 3 million people have already used direct-to-consumer genetic testing, often via online companies without the input of healthcare professionals, to find out information about their ancestry and health and many are participating in international genetic genealogy databases that will match them with relatives.Surrogacy Abroad

Professor Joyce Harper (UCL Institute of Women’s Health) explained: “DNA tests are increasingly being used to solve unknown parentage cases for adoptees and donor-conceived persons. People are finding half-siblings and even biological parents in online databases that are open to the public. A sperm donor does not have to be in the database to be identified as identification can be made from matches with other close relatives such as second or third cousins.”

Using these genetic databases, donor-conceived adults who have not been informed of their status may find out that they are donor-conceived, which may lead to traumatic breakdown of trust with parents.”

Recently, there has been a concerted effort within the scientific community and more widely to foster greater openness about genomic data. These developments indicate that many more healthcare clients are going to know information about their genomes in the future. The situation is further complicated by the fact that different countries, even with the EU, have different laws surrounding gamete donation, donor anonymity and parental disclosure.

by Rowan Walker, MedicalExpress.com, April 14, 2106

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in Anonymous/Known Donation / Egg Donation / Ethics / Known Donor / Recently Added  by Anthony Brown 0 comments

Egg Donations, Should Women Be Paid?

Paying for Egg Donations

In an egg donations situation, should a woman who donates eggs to help people with fertility problems conceive a child be able to charge as much as she can get in a free-market transaction? Or are there ethical reasons to limit her reimbursement?

That is the issue raised in a federal lawsuit that accuses two professional societies and the fertility clinics associated with them of illegal price-fixing that limits donor compensation. A federal judge in northern California has ruled that the claim can move forward and certified it as a class action, which could go to trial next year.

Guidelines issued by the American Society for Reproductive Medicine and the Society for Assisted Reproductive Technology suggest that paying a woman more than $10,000 for her eggs is “beyond what is appropriate” and even paying $5,000 or more requires “justification.”

A vast majority of the nation’s fertility clinics follow these the guidelines. The stated rationale behind them is to avoid offering so much money that donors, especially those who are often young and poor, will rush to contribute their eggs without considering the risks.

This payment system is unfair. However well-intentioned, it favors the fertility clinics, which can keep more for themselves if they pay donors less, as well as the women who pay for fertility treatments. Meanwhile, it shortchanges the egg donors, whose wishes are ignored in the equation. And if there are indeed risks, they can be addressed and mitigated by the clinics and the doctors, who can strengthen their screening and counseling procedures and provide more information.

The money that donors get is meant to compensate them for physical and psychological tests; weeks of hormone injections to stimulate egg production; frequent tests and ultrasound examinations to track the developing eggs; repeated visits to the doctor, and minor surgery to remove the eggs when they are ready for retrieval.

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Editorial Board – New York Times, October 21, 2015
in Egg Donation / In the News / Legal  by Anthony Brown 0 comments